Keralite family in UK need your help to save their two-year-old son diagnosed with blood cancer: Help – UKMALAYALEE

Keralite family in UK need your help to save their two-year-old son diagnosed with blood cancer: Help

Thursday 16 March 2023 7:18 PM UTC

By A Staff Reporter

LONDON March 16: Fate took a cruel turn in the lives of this young couple who arrived in the UK in 2022 with their two-year-old son.

Safana came to the UK in May 2022 as a student at the University of Roehampton, located in the London Borough of Wandsworth.

Safna’s husband Ameer and their two year old son Inayath too prepared to join her in the UK. However, just two days prior to Inayath’s arrival in the UK, unfortunately, the child was diagnosed with him suffering from the deadly blood cancer in October 2022.

The couple hoped that things would improve with them able to get some early treatment for their two-year-old toddler in the UK. However, all efforts to get some relief was eroding with Inayath having to spend considerable time in hospital.

Inayath is currently receiving treatment for acute lymphoblastic leukaemia from Great Ormond Street Hospital in London. The family are shuttling between the hospital and their sharing accommodation at Manor Park in London.

Inayath developed a fever, severe body pain, and swellings at the beginning of October 2022. He was later diagnosed with blood cancer after several blood tests and a bone marrow aspiration. At present he has chemotherapy every week, and the first sessions made him very ill, leaving him unable to eat or walk. Even now, he must be fed through a tube. His treatment could last up to 2.5 years, according to his doctors.

Chemotherapy and steroids are the primary treatments. A port is also implanted in his chest to facilitate regular blood tests, chemotherapy, and injections. His body is in excruciating pain because of the steroids. Some days, he is unable to sleep due to pain, and we must carry him throughout the night.

Speaking to this website Safana said: “We are having trouble finding our son a good place to live. We previously shared a residence. Therefore, we are unable to return to that lodging. If we use the bathroom and kitchen with other people, our chances of contracting an infection will increase. We have to pay more than £1,000 to get an ensuite room, which is out of our price range right now. Since I’m a student, my husband must watch the child when I attend class.

“We haven’t stopped paying the housing rent. Since we were admitted two months ago, our baby has grown increasingly agitated by the hospital setting. Therefore, we are asking everyone for assistance so that we can pay for other bills as well as a new place”.

Today, 16th March, Inayath got discharged from the hospital.

Speaking to this website Safana said: “Inayath had developed a fever last week and his HB level came down and there was some infection too in the port- a-Cath in his chest. So he underwent a minor surgery on March 14 to completely remove the port. Now a new picc line has been inserted through the vein in his arm.

“Meanwhile he had blood and platelet transfusion as well. Currently, all the chemotherapy medicines are on hold and they will be restarted once his blood count is enough and he should be free from all infections.

“I appreciate you taking the time to read. If you know of any organisation or charity that can help my son I will be forever grateful. I will accept all the support I can get for the wellbeing of my child.

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