Sunday 19 May 2019 11:58 PM UTC
By A Staff Reporter
EDAVA (Varkala) May 20 2019: A one-and-a-half year old girl child has been diagnosed with Type 1 Mucopolysacchridosis(MPS), a rare genetic disorder which is progressive and life threatening and an immediate operation is required to save the child.
Please click the link to read further abut the disorder: https://checkrare.com/mucopolysaccharidosis-type-1-mps-1/
The couple, from Edava in Thiruvananthapuram district, have visited a number of hospitals including SAT, Trivandrum and CMC, Vellore, and consulted with many doctors, ever since the birth of Ameya Ajith, their daughter. And the only treatment they suggest is an immediate bone marrow transplant.
For the last three months, the couple have been running from pillar to post for bone marrow donors, and they did find one German donor. According to the doctors at CMC, Vellore, the entire procedure would sum up to over 35 Lakhs INR($50,350).
Please see the medical reports attached for the details. The couple come from a poor background and cannot afford to raise such a lump sum.
The couple lost a son five years back to the same disorder. They have another elder son who is hail and healthy, by God’s grace. However, it’s heart-wrenching to see the whole family undergo this trauma.
At the age of 1.5, when she should be walking, climbing and exploring the beautiful world around her, it’s extremely saddening to see her crawl to move around. The couple are determined to do everything they can to save their only daughter, at any cost.
The couple have already exhausted all of their funds for her earlier treatments. The only asset they now have is their house, which they also plan to sell to raise the treatment’s funds.
The couple genuinely plead to all the kind and generous donors to help him and his family save their daughter, Ameya. The couple humbly request you to please help through donations, shares, and support campaigns.
To pay via Paytm (for Android users only) – http://m.p-y.tm/pay-milaap?comment=originId_71375&amount=2500&amount_editable=1
For UPI payment: givetoajithkumart@yesbankltd https://milaap.org/fundraisers/support-ameya-ajith/upi_deeplink (You can send money to this ID using BHIM, PhonePe or any UPI app)
You can also do a bank transfer to the below mentioned account:
Account number: 8080811071375
Account name: Ajith Kumar T
IFSC code: YESB0CMSNOC
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